It's Monday. Steff was released from the hospital on Sunday. She was on facebook and the computer most of the evening. I'm guessing she was catching up. LOL I couldn't get on to blog. Then when she finished, she was pretty bummed out and sad, with the whole situation. So, she asked me to lay with her. I did. She had a medium to mild episode once she fell asleep. I put the pill in her mouth. It didn't last too long. She has been good all day. A little in a fog from the meds, but no episodes. She did release quite a bit of anger today. She's very angry at me for taking her for the Gardasil shots. She refused to get out of the car when we got there. It was a struggle to get her into the office to get it. She cried when she got the shot and I laughed. I laughed b/c she is so dramatic, and was carrying on like she was 4. I had NO clue what we were in for. I'm angry with myself for not doing my homework on the vaccine. I'm glad she had her little outburst today, it explains why she is SO angry with me ALL the time. She also told me that's why she doesn't trust the holistic information. It's not about the information, it's about trusting the decisions I make. We chatted it out today. I hope it helped her. I can apologize 500 times, but I can't take it back. I feel bad about it myself, but I didn't know.
After the drama, she came to me and said she would try the sauna, but if she was uncomfortable with it, would I not make her do it. I agreed. She was in for 30 minutes with her ipod on and me in the room with her. SHe didn't sweat. I hope I can get her there again tomorrow.
I called Mayo Clinic today. We already faxed all the paperwork of tests and a medical summary of Steff. I called to make sure they received it. They did and it's already in their computer. They said they would call us with an appt. once they figure out which Dr. will be assigned to her case. I also called Blue Cross/Blue Shield, Mayo is in our network and they cover it. I'm glad. Dave wants to drive instead of flying. Road trips is something we do as a family. Steff will get the front seat so she'll be comfortable, we'll make as many stops as necessary.We drove around yesterday when she got out of the hospital, jamming on music. That's something we all enjoy doing. So, all we need to do is get the appointment, a room and get there. I hope they are open to this gardasil thing. My amazing niece found a girl that is going through a very similar thing as STeffanee. I plan to contact the mom tonight. Her daughter still is not in school. Her symptoms started on March of 08. I only hope and pray the Mayo can get this figured out and get her back on track. My goal is to have her ready for Prom, which is less than a month away. We have everything ready for prom, but the girl. We'll get her there! Keep us in your prayers. Tomorrow is a new day.