Saturday, April 21, 2012

As I am sending the link to this blog to yet another Gardasil mom, I take the time to read through it. I do believe there is good information throughout it, but I also remember that Steff was reading it, so at times, I didn't describe the seizures, neck jerking/twitching, or the eyes quivering even close to how bad it was to watch. She hated this blog and felt like it invaded her privacy. Perhaps it did, but I'm glad I have it for reference. Those of you that lived it with us, you know it was horrible. Those of you, just reading it .. I can honestly say this has been the most horrible experience of my life. Period.

On one of the FB groups, one mom asked if anyones daughter has been healed. There were several posts under it, most, like mine are doing SO much better, but aren't healed, all the girls still struggle in different areas. I learned something reading the updated posts. The sore throat and chronic sinus infections are common with the Gardasil Girls. I didn't connect it, I have seasonal allergies, figured her immune system was down and that turned it into a sinus infections. Hmm..... The new DR, the Naturalist, from now on, I will him Mr. N... said that could also be from her Adrenals. She just cannot get that blood, saliva and stool samples done quick enough for me. Seems that next Sunday just might fit into her schedule for all three.. Hope nothing interferes with that plan.

One more thing I need to follow up on. I did have the phone consult with Dr Mark, he believes the inflammation in her brain is from her eating the small amount of Gluten. He says gluten stays in the body months after eating it. He wants to do more food allergy testing on her.... my brain goes WHY?? One mom in touch with said that once they fixed her daughters Reverse T3, that all her food allergies were gone... That would be my goal..AND she is MUCH better....
The leaky gut, brain inflammation, and fatigue .... all connected to food allergies? Perhaps, but I want to try Dr. N first, to see if we can work from another direction. My honest feeling.... Steff has been through enough, has given up enough, if we can get her healthier w/o taking away things she enjoys, aka triscuits, chicken strips, then I'm trying it first. Thank you Dr. N for the wonderful web site I found on googling Naturalist Homeopathic Dr in Columbia MO. LOL

Tuesday, April 17, 2012

Yet another NEW DR......

So... We had our appointment this morning. Two hours later, we are on our way out. Very nice and concerned DR. Younger than I expected, but that's not a bad thing. He confimed that Gardasil has damaged this tender little body of hers. It was weak prior to the Vaccine, I have always admitted that, then the vaccine pushed it WAY over the edge.
Course of plan? Blood Draw on Sat (has too much going on to do it sooner, it always makes her pass out and get sick), stool sample on Sunday and Saliva testing ASAP, which means she has to get up at 8. SO, hopefully soon. He is testing her RT3, Lyme Disease and all the stuff I asked about, BUT he feels we have just been putting band aids on what is wrong, he wants to get to the root of the problem. He believes it's her adrenal glands, the digestive system, and that  is where he wants to start, OH and she's anemic on every blood test result I took with me. Wow. So... that's started, and hopefully soon she should be able to study better and focus without being exhausted all the time.
I cannot say LOUD enough that Steffanee has come a LONG way. Her life is full of activities, college stuff and she stays busy. At one time I wondered if any of that would EVER happen. So that said, I know my girl, she pushes and pushes that body beyond it's limits. She looks exhausted when I see her and usually sleeps the entire time she comes to visit. I'm okay with that, except I know her body and well, if you can figure out what to do to make it better, I'm all for it. This DR asked her a lot of questions... didn't realize it at the time, but he was questioning about the jobs her adrenal glands are supposed to do. Will know more after the testing, but I hope like hell that he gets to the bottom of her medical issues, the ones she has struggled with prior GARDASIL. The Brain fog, always hungry, inability to focus could be from the adrenals. Oh wouldn't that be nice, to fix that!
SO.. there you have it. Ole mom at it once again.... but isn't that my job?!? LOL I believe it is.
One more thing... as I was searching through Steff's medical stuff, I found the link to the list of side effects that MAYO Clinic had on their site. I'm posting it here so I will have a record of it. Not sure why, but it baffles me. IF they know of all these side effects ~ why can't they help your child? Or better yet ~ why do they keep giving the darn shots? Baffles me.
might have to copy and paste in browser... note to self. LOL