Saturday, June 19, 2010
So, today is June 19, and life is still good. Since we received her saliva results, Steff has been pretty much gluten free. Okay, friends/family, I'm not a dumb mom, I know she has a few cheats, so don't feel the need to tell me. LOL (FYI I DO have a friend or 2 that like to correct me) Anyway, overall, she does pretty good. She has been feeling much better & seems to have more tolerance. One evening last week, she was at a friends house, they were hungry & fixed a frozen pizza and indulged. She paid the price BIG time the next day, the day was completely wasted. She had a bad headache, stomach problems ALL day and just overall felt bad. She knew what caused it and wasn't sure it was worth it. SO, life is full of lessons. I believe one was learned ~ however, I'm very surprised it was frozen pizza (prob had a ton of additives as well), b/c she is a BIG Shakespeare Pizza fan. I wouldn't cheat with a frozen ~ I would make it worth my while on a GREAT pizza!! Kids. LOLI'm thinking that in a couple of weeks, I'll have her do the saliva test again, to see if she is making progress w/o gluten. Dr. Marks idea has always been ~heal the gut, then we will deal with the broken brain barrier. Nope, I have NOT given up on his ideas. We're still working with him, but for now are just concentrating on her gut. She still takes 3 liquids ~ B12 is one of them. I am very happy to say she seems like that "pre Gardasil" girl sometimes. I do have to make sure she eats on a regular basis ~ not counting sugar~ I know she's almost 19, but I'm the one that has to put up with her mood if her body is lacking on protein ~ I'm usually the one that gets the blunt of it. We argue over stupid stuff, then I realize she prob needs food, but we are usually WAY into an arguement over "nothing" before my light bulb goes on. I'm getting more tuned in!!So, she graduated and that was a great day. Yep, I shed a couple of tears, but I am SO happy for her. She is attending Mizzou in the Fall, staying in the dorms. I pray that all goes well. Her major is pediatric physical therapy at this point. We'll see. She took most of her basic college courses her Junior & Senior year for dual credits, so she is well on her way. I just hope she gets tuned into her body so all goes well. = )Me? I'm doing good. I'm hardly on the computer anymore, I will say that when I am, I still read stories and posts from moms with sick girls. It will always be in my heart to share and help with our experience all I can. I did purchase shirts from the TruthaboutGardasil.org ~ but I think I did it from Facebook, not sure. Anyway, I bought 3 nice T's with the website in cut out letters on the front of the shirt ~ yep, people ask questions. The shirt itself is nice, small words with a big message.I gave one of her friends one as well, she's going off to college in another city. She's been a big support through all of this. So, back to me. LOL I'm good, we're good and actually, it feels like life is good. I still pray for our girl, but she seems to be doing quite well. It is the small accomplishments in life that make me happy. I don't worry when she drives anymore, I feel okay leaving her at home alone again, I can sleep through the night w/o coming upstairs a couple of times through the night to make sure she's breathing and okay. So, yeah, I pretty much would say, life is good. = ) So, unless things go south, I probably won't feel the need to vent ~ LOL That is how this blog thing got started ~ me letting my feelings out, along with getting information out to friends/family without being on the phone all night. It has helped me more than anyone will ever know ~ this blogging thing. Plus the contacts I have made through moms reading it. So, many thanks to all of you that have helped us through this tough time in our lives... here's to hoping that Life is Good every day.. for all of us!!
Posted by Robin at 9:31 PM